Ph.D candidte, Binghamton University
The focus of this research is to explore the experience of making serious decisions for ICU patients
Patients in ICU are often incapacitated and not able to make decisions for themselves and may require a representative from their family or surrogate decision maker to make the serious health-related decisions during their hospitalization in the ICU. Currently, the experience of decision making for the families of ICU patients in Saudi Arabia is unknown. Understanding this experience will help healthcare providers to provide better care for the patients and their families. ICU care providers often fail to direct attention or care to their patient
s family and mainly focus on delivering optimal care to the patients themselves. Providing adequate information and time to the patients families may them in choosing the appropriate option to achieve the desired patient
s outcomes. Decisional regret might be experienced when patients and or their families fail to achieve the desired patients outcomes. Decisional regret may negatively impact the patients
families which may negatively influence the patients response to the treatment regimen.
Decision-making process might be influenced by many factors such as culture and the socioeconomic status, because of that, I thought that exploring the decision-making experience among the families of ICU patients
in Saudi Arabia will help in better understand the needs of these families in order to achieve their desired patients goals. Achieving the desired goal may or may not reduce the insedense of decisional regret.
The main focus of this reserch is to explore and understand the phenomenon of making serious health-related decisions for a loved one who is not able to make thoses decisions by themselves. Up to date, littel is known about the experience of the families of ICU patients in Saudi Arabia, the findings of this current study will help in minimize this gap in the literture.
Abstract: Family members of cancer patient's have multiple needs, many of which are not adequately met. Unmet needs may affect psychological distress and quality of life (QOL). The purpose of this study was to assess needs and unmet needs, QOL, symptoms of anxiety and depression, and the relationship between those variables in a large sample of family members of cancer patients in different phases of illness.Of 332 family members invited to participate, 330 accepted and 223 (67%) completed a cross-sectional, descriptive study. Data was collected with the Family Inventory of Needs (FIN), Quality of Life Scale (QOLS) and the Hospital Anxiety and Depression Scale (HADS).Of 20 needs assessed the mean (SD) number of important needs and unmet needs was 16.4 ± 4.3 and 6.2 ± 5.6, respectively. Twelve important needs were unmet in 40-56% of the sample. The mean number of unmet needs was significantly higher among women than men, other relatives than spouses, younger family members, those currently working and those of patients with metastatic cancer. QOL was similar to what has been reported for healthy populations and cancer caregivers in advanced stages. The prevalence of symptoms of anxiety and depression was high (20-40%). Anxiety scores were higher among women than men and both anxiety and depression scores were highest during years 1-5 compared to the first year and more than five years post diagnosis. There was a positive relationship between number of important needs and QOL, and between needs met and QOL. Additionally, there was a significant relationship between anxiety and unmet needs. Finally, there was a significant relationship between QOL and symptoms of anxiety and depression.The results support the importance of screening needs and psychological distress among family members of cancer patients in all phases of illness.
Pub.: 15 Jan '11, Pinned: 02 Jul '17
Abstract: The uncertain trajectory of chronic critical illness exposes the patient's family to heightened levels of psychological distress. Symptoms of psychological distress affect more than half of family members exposed to the patient's chronic critical illness. Although symptoms often dissipate over time, a significant proportion of family members will remain at moderate to high risk for psychological distress well after the patient's death or discharge from the intensive care unit. Family members of chronically critically ill patients are often involved in the decision making for the patients. Irrational or uninformed decision making can occur when family members experience high levels of psychological distress. Attention to the psychological needs and provision of support to family members enhance the formulation of treatment decisions consistent with the patient's preferences and mitigate unnecessary resource use. In this article, the impact of chronic critical illness on family members' risk for depression, anxiety, and posttraumatic stress disorder is described and a review of evidence-based strategies to support the psychological needs of family members coping with a patient's chronic critical illness is provided.
Pub.: 02 Feb '10, Pinned: 02 Jul '17
Abstract: Decisional conflict may predispose surrogate decision makers (SDMs) of the chronically critically ill (CCI) to making health care decisions that are not aligned with the patient's health care preferences and increase the SDM's likelihood of experiencing decision regret. This study establishes the relationship between decisional conflict and decision regret and offers insight on tailoring decision support interventions to the preferences of SDMs of CCI patients.
Pub.: 11 Jun '11, Pinned: 02 Jul '17